一项系统性审查评估了患者报告的眼睛表面疾病的结果指标的质量
Pawan Baral1, Sheela Kumaran1, Fiona Stapleton1
1School of Optometry and Vision Science, Faculty of Medicine and Health, UNSW Sydney, Australia.
The ocular surface
|December 4, 2024
概括
目前针对眼表面疾病 (OSDs) 的患者报告结果测量 (PROMs) 显示了质量和患者参与方面的局限性. 需要进一步的研究来开发更高质量的PROM来测量OSD生活质量.
科学领域:
- 眼科医生 眼科 眼科
- 患者报告的研究结果研究结果
- 生活质量评估生活质量评估
背景情况:
- 眼部表面疾病 (OSD) 显著影响患者的生活质量 (QoL).
- 经验证的患者报告结果测量 (PROM) 对于评估OSD患者的QoL至关重要.
- 需要对OSDs现有的PROM进行全面评估.
研究的目的:
- 识别和评估目前可用的验证PROMs的质量,以测量OSDs的QoL影响.
- 评估现有的OSD特定PROM的心理测量特性和内容.
- 确定局限性,并指导OSDs的PROM的未来发展.
主要方法:
- 在主要数据库 (PubMed,Embase,Scopus,Cochrane,Web of Science) 进行了系统的文献搜索.
- 包括关于OSD特定PROMs的开发,验证和使用的研究.
- 使用已确定的标准提取和评估内容,心理测量属性,有效性和可靠性的数据.
主要成果:
- 在各种OSD中确定了34个独特的PROM,其中16个特定于干眼.
- 发现对心理测量属性的测试有限,大多数数据是关于内部一致性和基本有效性的.
- 大多数PROM (25/34) 没有让患者参与内容开发,许多仅关注症状.
结论:
- 目前用于OSD的PROM存在重大局限性,包括缺乏患者参与,内容受限和心理测量属性不足.
- 没有一个PROM可以推用于测量OSD特定的QoL.
- 显然需要为OSD开发更高质量的以患者为中心的PROM.
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