对于患有帕金森病的人来说,数字支持的家庭炼的感知:一种定性研究
Jenny Sedhed1,2, Hanna Johansson1,2,3, Elisabet Åkesson2,4
1Department of Neurobiology, Care sciences and Society, Division of Physiotherapy, Karolinska Institutet, Stockholm, Sweden.
Clinical rehabilitation
|December 5, 2024
概括
患有帕金森病的人发现数字支持的家庭炼是一种双刃剑,提供了代理,但也提供了脆弱性. 与社会考虑平衡自我指导的目标是保持身份的关键.
科学领域:
- 康复科学 康复科学 康复科学
- 数字健康数字健康
- 运动障碍 运动障碍
背景情况:
- 数字支持的家庭炼可以增加康复的可访问性.
- 对于帕金森病患者如何体验数字家庭炼计划的理解有限.
研究的目的:
- 探索和描述帕金森病患者对非实时支持的数字家庭运动的看法.
- 了解这种运动方式对他们的日常生活的影响.
主要方法:
- 用诱导方法进行定性内容分析.
- 深度,个人,半结构面试.
- 14名参与者患有帕金森病.
主要成果:
- 两个总体主题出现了:"面对不确定性的积极主体"和"家庭 - - 展示安全空间或残疾".
- 主题包括:抵抗疾病 (希望/负担),解释混合信息,家庭炼考虑和社会背景 (判断/支持).
- 参与者认为家庭炼是对抗帕金森病的一种方式,提供了希望,但也是一种负担,可能会暴露残疾.
结论:
- 帕金森病患者面临的挑战是调和个人炼信念与外部影响.
- 家庭炼包括平衡自我指导的目标,社会考虑和身份完整性.
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