提前提前护理计划:评估"表达我的选择"的修订版本
Sima Bedoya1, Mallorie Gordon1, Keri Zabokrtsky2
1Pediatric Oncology Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland, USA.
Journal of palliative medicine
|December 5, 2024
概括
修订后的表达我的选择指南帮助患有严重疾病的青少年和年轻人 (AYA) 讨论预先护理计划 (ACP). 大多数AYA发现这本指南有助于考虑他们的终身护理偏好.
科学领域:
- 医学人文学科 医学人文学科
- 患者倡导 患者倡导
- 儿科瘤学 儿科瘤学
背景情况:
- 提前护理计划 (ACP) 对患有严重疾病的青少年和年轻人至关重要.
- 现有的非洲国家和地区 (ACP) 工具可能无法充分满足AYA的独特需求和偏好.
- 有效地沟通护理偏好对于改善生活质量至关重要.
研究的目的:
- 评估"表达我的选择" (VMC) 预先护理计划指南的修订版.
- 收集严重疾病的AYA对指南的内容和布局的反.
- 评估指南在促进关于终身护理偏好讨论方面的有用性.
主要方法:
- 采用了结构化面试方法.
- 两种版本的VMC指南被介绍给了参与者.
- 收集了关于内容,布局和整体帮助性的反.
主要成果:
- 参与者显然更喜欢VMC指南的第2版本.
- AYAs同意加入新的部分,包括个人信息,儿童和反思.
- 大多数AYA (95.5%) 认为这本指南有助于考虑他们的护理.
结论:
- 对VMC指南的更新应与AYA的生命终端偏好保持一致.
- 直接让AYAs参与针对他们的关注的非洲和非洲国家讨论是有价值的.
- 该VMC指南有可能提高面临严重疾病的AYA的护理质量和生活质量.
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