开发一个工具包,以支持家长参与儿童死亡审查:一个基于经验的共同设计研究
Joanna Jane Garstang1,2, Jenna Spry3,4, Gayle Routledge5
1School of Nursing and Midwifery, University of Birmingham College of Medical and Dental Sciences, Birmingham, UK j.garstang@bham.ac.uk.
Archives of disease in childhood
|December 8, 2024
概括
开发一个工具包,让家长参与儿童死亡审查 (CDRs) 对于悲伤的家庭和系统改进至关重要. 这套共同设计的工具集增强了家长对CDR过程的参与.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 悲伤研究 悲伤研究
- 医疗保健服务研究 医疗服务研究
背景情况:
- 了解儿童死亡率对于父母的支持和医疗保健系统的增强至关重要.
- 目前,父母参与儿童死亡审查 (CDRs) 的研究不足.
- 现有的CDR流程缺乏标准化的方法来吸引悲伤的父母.
研究的目的:
- 开发一套工具,支持家长参与儿童死亡审查 (CDR) 过程.
- 为了解决在CDR期间为家长提供更好的沟通和资源的需求.
- 在CDR框架内增强丧亲父母的经验.
主要方法:
- 对儿科重症监护单位 (PICU) 和息护理服务的调查确定了研究地点.
- 与医疗保健专业人员和丧亲父母进行了半结构化采访.
- 基于经验的共同设计研讨会被用来开发工具包.
主要成果:
- 主要的家长担忧包括对CDR会议的认识,投入机会,安排和反.
- 共同设计研讨会涉及10名家长和23名专业人士.
- 开发的工具包包括培训视频,标准化路径,模板信件,反表,易读的传单和动画.
结论:
- 基于经验的共同设计成功地促进了敏感工具包的创建.
- 来自丧亲组织和研究人员的大量支持是必不可少的.
- 建议进一步评估工具包的有效性.
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