让幸存者和瘤学家的利益相关者参与开发患者报告的结果评估,作为幸存者护理的组成部分
Heather B Neuman1,2, Kristine L Kwekkeboom3,4, Amye J Tevaarwerk5
1Department of Surgery, University of Wisconsin, Madison, WI, USA. neuman@surgery.wisc.edu.
概括
一个新的患者报告结果 (PROs) 评估与利益相关者一起开发,以评估乳腺癌幸存者的症状和担忧. 这个PRO工具对幸存者来说是可以接受的,并且有助于在随访护理期间评估他们的福祉.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 幸存者护理 幸存者护理
背景情况:
- 将患者报告的结果 (PRO) 纳入幸存者护理中可以提高后续的全面性.
- 乳腺癌幸存者经历了各种症状和治疗后的担忧.
研究的目的:
- 为乳腺癌幸存者的症状和担忧制定PRO评估.
- 让利益相关者参与创建一个用于乳腺癌随访的工具.
主要方法:
- 召集了患者和瘤学家咨询小组,以制定初步的PRO评估.
- 包括生存领域,测量仪器和临床值.
- 根据社区焦点小组和对幸存者进行试点测试,对评估进行了修订.
主要成果:
- 确定了关键领域:复发症状,治疗副作用,坚持,心理健康,性健康.
- 最初的试点:94名幸存者,评估易于理解,失踪率低.
- 常见的症状:热 (46%),疲劳 (35%),背部疼痛 (31%),关节疼痛 (31%),焦虑 (30%).
结论:
- 通过利益相关者的意见,制定了一项全面的PRO评估,以评估乳腺癌幸存者的福祉.
- 对于幸存者来说,PRO评估是可以接受和理解的.
- 未来的研究将专注于将PRO评估纳入临床实践.
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