促进有医疗复杂性的儿童和青少年从儿科到成人护理的密集过渡:一个随机对照试验的PITCare研究协议
Sara Santos1, Donna Thomson2, Sanober Diaz3
1Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada.
BMJ open
|December 9, 2024
概括
对患有医疗复杂性 (CMC) 的儿童进行密集过渡支持,改善了18岁后的护理连续性. 这项研究评估了PITCare干预措施.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 关怀的过渡 关怀的过渡
- 医学复杂性 医学复杂性
背景情况:
- 患有医疗复杂性 (CMC) 的儿童需要持续,专业的护理.
- 从儿科到成人医疗保健系统的CMC过渡,在护理协调和连续性方面提出了挑战.
- 现有的支持往往是不够的,导致CMC的非最佳结果.
研究的目的:
- 评估促进医疗复杂性儿童和青少年密集过渡 (PITCare) 干预措施的有效性.
- 为了确定是否密集的,以患者和护理人员为导向的过渡支持可以改善18岁以后CMC的护理连续性.
- 在一个随机对照试验中,将PITCare干预与常规护理进行比较.
主要方法:
- 一个实用优越性随机对照试验,并行组,双臂设计和嵌入的定性组件.
- 招募154名满17岁半的CMC参与者及其主要照顾者.
- 干预部门接受了多学科的过渡团队支持2年,重点关注护理规划,成人PCP整合,子专业促进和资源支持.
主要成果:
- 主要结果是成功完成转移,定义为18岁后2年的持续护理.
- 二次结果包括满意度,自我管理,护理协调,医疗利用,护理人员负担和成本效益.
- 定性访谈将探讨与PITCare干预的参与者和提供者的经验.
结论:
- 该PITCare干预旨在解决CMC过渡到成年人护理期间的低最佳护理协调和不连续性问题.
- 调查结果将为CMC的医疗保健政策和转型支持策略提供信息.
- 这项研究将为参与过渡过程的患者,护理人员和医疗保健提供者的经验提供见解.
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