开发一个家长决策支持工具的手术性死性肠球炎:一个研究协议
Rosa Verhoeven1,2, Elisabeth M W Kooi2, Sylvia A Obermann-Borst3
1Department of Surgery, Division of Paediatric Surgery, University Medical Centre Groningen, Groningen, The Netherlands r.verhoeven@umcg.nl.
BMJ open
|December 9, 2024
概括
这项研究开发了一种决策工具,用于面对死性肠球炎婴儿的关键选择的家长,平衡手术风险与息护理,以改善以家庭为中心的护理和结果.
科学领域:
- 新生儿医学 新生儿医学
- 医学伦理 医学伦理
- 医疗保健服务研究 医疗服务研究
背景情况:
- 死性肠球炎 (NEC) 是早产婴儿的严重疾病,通常需要紧急手术 (拉巴切除术).
- 高度的手术风险和可能导致严重的长期残疾使治疗决策复杂化.
- 当预后不好时,息治疗是一种替代方案,但父母的决策是具有挑战性的.
研究的目的:
- 为患有NEC的婴儿的父母开发一个决策支持工具.
- 帮助家长权衡腹腔切除术和息治疗之间的复杂选择.
- 加强以家庭为中心的护理,并优化婴儿的结果.
主要方法:
- 结合Delphi技术和Q方法来识别和分析家长的决策因素.
- 第一个阶段:Delphi过程确定关键决策因素.
- 第二阶段:Q方法识别家长的决策概况和量身定制的建议.
主要成果:
- 确定了影响父母在腹腔切除术和NEC的息治疗之间做出决定的关键因素.
- 根据Q-方法分析,开发出不同的家长决策配置文件.
- 创建了一个在线决策支持工具来分类家长的观点,并提供量身定制的建议.
结论:
- 开发的决策支持工具旨在帮助家长在复杂的NEC治疗决策.
- 预计这种方法将改善以家庭为中心的护理和婴儿结果.
- 进一步的评估将评估该工具在现实世界的场景中的有效性.
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