"他们真的信任我们吗?" :从一个志愿者研究登记册中吸取的教训
Sylk Sotto-Santiago1,2, Sarah Wiehe2,3, Brenda Hudson2
1Department of Medicine, Indiana University School of Medicine, Indianapolis, IN, USA.
Journal of clinical and translational science
|December 10, 2024
概括
许多人不信任医学研究,41%的人认为医生出于自私的原因进行研究. 了解和解决这种不信任对于改善健康研究参与和参与至关重要.
科学领域:
- 基于社区的参与式研究.
- 医疗服务研究 医疗服务研究
- 生物医学研究的参与.
背景情况:
- "全因健康" (All IN for Health) 是印第安纳州的一个社区-学术合作伙伴关系,专注于健康研究素养和参与.
- 由印第安纳州临床和翻译科学研究所 (I-CTSI) 赞助.
研究的目的:
- 测量研究志愿者对生物医学研究和医疗保健组织的信任.
- 确定影响社区对健康研究信任的因素.
主要方法:
- 开发并使用了信任关系与研究参与度 (RTRE) 调查,包括5分利克特级别的36项和3个开放文本问题.
- 在调查启动之前,进行了3个焦点小组,共有24名参与者.
- 通过All IN for Health新闻通讯招募参与者,参加2022年夏季的调查管理.
主要成果:
- 663个人参与了调查.
- 41%的人认为医生出于自私的原因进行研究;50%的人不同意患者无论种族/种族如何都得到公平的待遇.
- 67%的人认为参与医学研究是安全的,但79%的人从未被要求参与;10%的人对少数民族参与研究持有歧视性的信念.
结论:
- 衡量信任对于促进参与者招聘和确保机构问责制至关重要.
- 了解社区的信任和对研究实践的批判性反思对于真正的参与至关重要.
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