除了治疗之外:了解儿童息护理中的家庭经验
Pablo Del Villar Guerra1, Marta Andrés de Álvaro1, Laura García Miralles1
1Department of Paediatrics, Hospital Universitario Río Hortega, Valladolid, Spain.
Palliative & supportive care
|December 12, 2024
概括
儿科息护理 (PPC) 显著改善了家庭福利和生命限制疾病儿童的生活质量. 建议加强沟通和服务可用性,以获得最佳的护理人员支持和计划有效性.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 以家庭为中心的医学
- 质量健康研究 质量健康研究
背景情况:
- 儿科息护理 (PPC) 计划旨在提高致命疾病儿童及其家属的生活质量.
- 了解家庭经历对于优化PPC服务至关重要.
研究的目的:
- 探索有孩子的家庭在PPC计划中的多方面的经验.
- 评估人们对护理质量和有效性的感知.
- 确定需要改进的领域.
主要方法:
- 具有现象学视角的定性描述方法.
- 与6名主要护理人员进行半结构面试.
- 使用Atlas.ti 8.0®软件进行主题分析.
主要成果:
- 报告了对家庭动态,患者护理和护理人员支持的积极影响.
- 情绪健康的改善,包括减少焦虑和恢复正常生活.
- 发现的挑战:沟通缺口,有限的服务可用性和家庭护理限制.
结论:
- PPC计划对家庭的感知生活质量有积极的影响.
- 整体的,以家庭为中心的护理至关重要;护理人员的需求必须得到解决,以防止倦怠.
- 解决沟通,服务可用性和支持结构的问题可以增强PPC计划.
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