解决全球多学科利益相关者包容性的障碍:从全球或表面裂研究中吸取教训 优先设定重点
Niki Kouvroukoglou1, Sanita Sandhu2, Barbara Delage3
1Medical School, University of Edinburgh, Edinburgh, UK.
Journal of global health
|December 12, 2024
概括
这项研究适应了儿童健康和营养研究倡议 (CHNRI) 方法论,以确定 orofacial 裂的全球研究重点. 它旨在通过让包括患者和家长在内的各种利益相关者参与来提高包容性,以改善未来的研究代表性.
科学领域:
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
- 全球健康 全球健康
背景情况:
- 在确定研究重点时,包容性对于代表所有利益相关者的观点至关重要.
- 经验丰富的医疗保健工作者的洞察力至关重要,但在正式研究中往往代表性不足.
- 多学科的医疗保健环境对研究中的包容性提出了独特的挑战.
研究的目的:
- 修改儿童健康和营养研究倡议 (CHNRI) 方法,以提高研究重点设定中的包容性.
- 解决阻碍多方利益相关者参与的障碍,特别是在多学科医疗保健领域.
- 开展全球研究重点设定练习,以改善包容性或面部裂.
主要方法:
- 调整了CHNRI的方法,用于对 orofacial裂进行全球研究优先设定.
- 包括研究专家,多学科临床医生,患者,家长和非政府组织 (NGO).
- 实施的方法变化,如调查编辑,子组讨论,人口统计部分,多语言翻译和替代传播.
主要成果:
- 收到了来自78个国家和18个专业的412个回复和1420个问题.
- 实现了广泛的参与,但注意到公平代表性的挑战,外科医生组成了最大的群体 (30%),患者/家长群体比例较小 (9%).
- 管理了三种语言的响应,并解决了非研究问题提交的问题.
结论:
- 这项实践是首批在全球范围内让患者,家长,临床医生和研究人员参与问题提交阶段的CHNRI倡议之一.
- 该研究详细介绍了一种解决研究优先设定中包容性挑战的方法.
- 人口统计数据作为未来CHNRI实践的基准报告,旨在实现更大的包容性.
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