要求死亡医疗援助的患者及其亲属的支持需求:使用半结构面试和书面叙述的定性研究
Stijn Vissers1,2, Joni Gilissen1,2, Joachim Cohen1,2
1End-of-Life Care Research Group, Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel, Brussels, Belgium.
International journal of public health
|December 13, 2024
概括
患者和亲属在死亡医疗援助 (MAID) 旅程期间有不同的支持需求,突出了医疗方面的社会和存在方面的方面. 息治疗可以有效地解决这些需求.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 医学伦理 医学伦理
- 定性研究是指质量研究.
背景情况:
- 死亡医疗援助 (MAID) 轨迹涉及复杂的患者和家庭经历.
- 了解MAID期间的多方面的支持需求对于整体护理至关重要.
研究的目的:
- 探索患者及其亲属在死亡医疗援助 (MAID) 轨迹中的支持需求.
主要方法:
- 在2022年在比利时进行的定性研究.
- 包括15名接受MAID的患者和21名亲属的半结构化采访和个人书面叙述.
- 采用定性内容分析来确定支持主题.
主要成果:
- 确定了八个不同的支持需求:最大限度地提高日常功能,理解痛苦,管理活动,导航存在问题,心理情绪调节,社交互动,理解MAID过程和实际问题.
- 患者主要报告了与日常功能相关的需求.
- 亲属主要报告了与理解难以忍受的痛苦有关的需求.
结论:
- 患者和亲属在整个MAID轨迹中经历了多维支持需求.
- 女士的轨迹更多地被认为是社会/存在的途径,而不是纯粹的医学途径.
- 建议采用息护理方法,以满足MAID患者和亲属的综合支持需求.
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