患者和医生在抗中性粒细胞质抗体相关血管炎的总体评估之间的关系
Ajinkya Bhonsle1, Timothy Coughlan1, Rachel Graven2
1Department of Nephrology, Monash Medical Centre, Monash Health, Clayton, Victoria, Australia.
医生和患有抗中性粒细胞质抗体相关血管炎 (AAV) 的患者通常同意全球健康评估. 在26%的病例中出现了不一致,突出了潜在的未满足的患者需求,并改善了共享决策.
科学领域:
- 类风湿病学 类风湿病学
- 临床医学 临床医学
- 患者报告的结果
背景情况:
- 抗中性粒细胞质抗体相关血管炎 (AAV) 显著影响患者的健康相关生活质量 (HRQoL).
- 全球评估工具,利用视觉模拟尺度,捕捉患者和医生对疾病活动和整体幸福感的观点.
研究的目的:
- 调查患者全球评估 (PtGA) 和医生全球评估 (PhGA) 之间的关系.
- 探索这些全球评估如何与AAV患者的整体健康和HRQoL相关.
主要方法:
- 一项前性观察性研究,涉及97名患有AAV的患者,他们参加了三级血管炎诊所.
- 主要结局包括PtGA和PhGA得分 (较高的得分表明健康状况更好),SF-36用于评估HRQoL.
- 不一致性被定义为PhGA和PtGA之间≥20的绝对差异.
主要成果:
- 平均PhGA和PtGA得分相似,没有医生系统地高估患者的健康状况.
- 医生报告说,患有活跃疾病的患者得分较低,在这个子组中显示出较低PtGA的趋势.
- 在26%的患者中观察到不一致;在这些情况下,医生比患者更有可能报告患者健康状况较差.
结论:
- 医生全球评估不会系统地高估AAV患者的健康状况.
- 全球评估工具显示与SF-36的相关性,这是一个常见的HRQoL指标.
- 分析PtGA/PhGA不一致性可以揭示未满足的患者优先事项,并增强医生-患者共享决策.
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