"分享恐惧":癌症父母与家属和共同父母的沟通担忧:一种定性需求评估研究
Cinzia Caparso1, Zoe Bowen, Sung Won Choi
1Author Affiliations: Department of Systems, Populations and Leadership Center for Improving Patient and Population Health, University of Michigan School of Nursing (Dr Caparso); Rogel Cancer Center, University of Michigan (Drs Caparso and Choi); and Department of Pediatrics, Blood and Bone Marrow Transplant Program, University of Michigan, Michigan Medicine (Dr Choi and Ms Bowen), Ann Arbor.
患有癌症的父母和他们的共同父母需要帮助沟通癌症,财务和情感问题. 最好采用虚拟干预来支持家庭的弹性.
科学领域:
- 在瘤学瘤学.
- 家庭研究 家庭研究
- 沟通研究 沟通研究
背景情况:
- 癌症对家庭产生重大影响,对患有癌症的父母及其家属造成痛苦和功能改变.
- 对于癌症父母及其共同父母所面临的特定沟通挑战的理解有限.
- 共同父母在支持依赖者到成年之前发挥着至关重要的作用,在癌症幸存期间导航复杂的家庭动态.
研究的目的:
- 探索患有癌症的父母和他们的共同父母之间与癌症相关的相互沟通问题.
- 为这一群体确定首选的干预交付方法.
主要方法:
- 定性研究涉及对15名患有癌症的父母和15名共同父母进行半结构面试.
- 面试是在2022年10月至2023年9月期间通过Zoom虚拟进行的.
- 数据分析采用了Charmaz的感应基础理论方法.
主要成果:
- 患有癌症的父母和共同父母表示,他们需要沟通支持,以便与家属讨论癌症诊断,生命终结计划,财务管理和情绪/心理健康问题.
- 大多数参与者表示他们更喜欢虚拟交付的干预.
- 在癌症生存的各个方面确定了相互沟通的需求.
结论:
- 这项研究为患有癌症的父母和他们的共同父母提供了与癌症相关的沟通挑战的共同观点.
- 调查结果可以为开发基于网络的干预措施提供信息,以增强家庭的性.
- 需要提高提供者的意识和资源,以支持受癌症影响的家庭.
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