来自生命终端研究伙伴关系网络的探索性研究,以改善一个地区的种族多样性社区的获取机会
Erica J Cook1, Elaine Tolliday2, Nasreen Ali3
1School of Psychology, University of Bedfordshire, Luton, England.
Health and social care delivery research
|December 14, 2024
概括
少数民族群体面临着缓和护理的障碍. 建立包容性研究伙伴关系,如KEEch研究伙伴关系网络,对于解决这些不平等问题和改善终身护理准入至关重要.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 健康 公平 卫生 公平
- 社区参与 社区参与
背景情况:
- 少数民族患者在获得及时有效的息和终身护理方面存在差异.
- 这导致症状管理较差,并在生命结束时增加了密集治疗.
- 需要在服务不足的社区内建立研究能力,以解决这些进入障碍.
研究的目的:
- 建立一个强大的,包容性和代表性的研究伙伴关系.
- 促进研究,解决不同种族群体在息和终身护理方面的不平等问题.
主要方法:
- 成立了KEEch研究伙伴关系网络,与80多个合作组织合作.
- 与服务提供商 (n=11) 进行了采访,并与社区利益相关者,非正式照顾者和宗教领袖举行了圆桌研讨会.
- 通过定性参与,探索需求,挑战和研究优先事项.
主要成果:
- 确定了影响少数族裔群体获得息治疗的社会文化和结构障碍.
- 突出了基于社区的非正式护理和机构医疗服务之间的脱节.
- 在文化上有能力,以人为中心的护理和更好地整合服务的需要上达成共识.
结论:
- KEEch研究伙伴关系网络提供了与各种社区利益相关者成功合作的见解.
- 提供了一个建立研究伙伴关系以解决息护理不平等问题的模型.
- 这种协作方法可以应用于解决更广泛的健康不平等问题.
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