针对儿童糖尿病研究中个人报告结果 (PROs) 的标准化:一个共识报告
Katharine Barnard-Kelly1, David Marrero2, Maartje de Wit3
1Southern Health NHS Foundation Trust, Southampton, UK.
Diabetic medicine : a journal of the British Diabetic Association
|December 17, 2024
概括
评估儿童糖尿病的个人报告结果对于改善健康至关重要. 这份共识声明指导这些措施在研究和临床实践中用于更好的糖尿病管理.
科学领域:
- 儿科内分泌学 儿科内分泌学
- 行为健康 行为健康
- 临床研究方法论 临床研究方法论
背景情况:
- 糖尿病是儿童和青少年普遍存在的慢性疾病,受到自我管理和个人观点的重大影响.
- 儿童糖尿病的最佳健康结果需要解决疾病管理和个人经验的负担.
- 对行为和心理健康结果的标准化评估对于理解个人报告的结果 (PROs) 以及身体健康至关重要.
研究的目的:
- 总结在儿童糖尿病中评估和利用PRO措施的关键主题和经验教训.
- 为在研究和临床实践中为患有糖尿病的儿童和青少年及其照顾者提供PRO措施标准化的基础.
- 探索PROs在临床研究中的评估和例行整合.
主要方法:
- 糖尿病专家制定共识声明.
- 总结PRO措施的核心主题和经验教训.
- 探索例行评估方法,并纳入PROs.
主要成果:
- 协商一致声明探讨了儿童糖尿病中个人报告的结果 (PROs).
- 它概述了如何定期评估和将PRO纳入临床研究.
- 它为未来PRO措施的标准化提供了一个平台.
结论:
- 对PRO的标准化评估对于儿科糖尿病护理和研究至关重要.
- 将PRO纳入临床实践和研究可以改善健康结果.
- 这一共识为推进在儿科糖尿病中使用PROs提供了一个框架.
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