共同创建一个定性生育研究,通过患者参与来了解等待时间的经验
Madison Healey1, Julia Craig1, Sarah Thomas2
1School of Human Kinetics and Recreation, Memorial University of Newfoundland, Physical Education Building, 230 Elizabeth Avenue, St. John's, Newfoundland and Labrador, NL, A1C 5S7, Canada.
Research involvement and engagement
|December 19, 2024
概括
患者参与重塑了一项关于不孕症等待经验的定性研究,改进了研究并赋予参与者权力. 这种协作方法增强了研究的研究效果.
科学领域:
- 生殖健康 生殖健康
- 定性研究方法 定性研究方法
- 患者参与到研究中.
背景情况:
- 在全球范围内,不孕症影响了8-12%,在纽芬兰和拉布拉多,长时间等待生育服务造成了痛苦.
- 现有的生育研究存在差距,特别是在长期等待期间患者的生活经历方面.
- 让患有不孕症的人参与研究设计可以改善结果,并促进患者的赋权.
研究的目的:
- 共同开发一个定性研究项目,专注于了解患者等待生育服务的经验.
- 利用患者参与计划,涉及在纽芬兰和拉布拉多州有过不孕症经历的人.
- 通过将患者的观点纳入研究过程,赋予患者权力.
主要方法:
- 招募了三名有实践经验的患者伴侣等待生育服务.
- 使用国际公众参与协会 (IAP2) 框架制定了患者参与计划.
- 使用公众和患者参与评估工具 (PPEET) 评估患者合作伙伴的满意度和影响.
主要成果:
- 患者的投入重新聚焦了该研究的目标,即患者赋权.
- 患者合作伙伴改进了研究设计,协议,面试指南和参与者标准.
- PPEET分析显示了高的患者满意度,对贡献的感知价值和对角色的理解.
结论:
- 与患者参与共同创建定性生育研究显著改变了方法和研究重点.
- 患者参与方法解决了生育研究中的知识差距.
- 这种方法促进了一个包容和赋权的环境,为患者合作伙伴在生育研究.
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