确定患者合作伙伴在研究团队中的角色:范围审查
Georgia Tobiano1,2, Brigid M Gillespie1,2,3, Joan Carlini4
1NHMRC Centre of Research Excellence in Wiser Wound Care, Griffith University, Gold Coast Campus, 1 Parklands Dr, Southport, QLD, 4222, Australia.
Research involvement and engagement
|December 19, 2024
概括
确定患者在研究中的合作伙伴角色需要动态的,共享的决策. 这种方法通过考虑不断变化的需求和情况,提高了参与度和研究影响.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 患者参与 患者参与
- 合作研究合作研究.
背景情况:
- 患者合作伙伴可以在研究团队内承担不同的角色.
- 国际指导方针提倡协作角色确定,以提高研究影响和患者体验.
研究的目的:
- 描述患者合作伙伴在健康研究中的共同研究员角色是如何建立的.
- 确定影响决策过程的因素来定义这些角色.
主要方法:
- 进行了对英语语言研究和评论的范围审查.
- 搜索了数据库,补充了引用搜索.
- 两个患者合作伙伴为审查过程做出了贡献.
主要成果:
- 包括45篇论文,主要来自英国和加拿大.
- 患者合作伙伴角色是由研究/团队属性塑造的,涉及共同的,持续的决策.
- 影响参与的因素包括患者,研究人员和与活动相关的因素.
结论:
- 动态,系统和共享的决策过程是有意义的患者合作伙伴参与的关键.
- 研究的不断变化的性质和患者的情况可能需要重新谈判角色.
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