自闭症谱系障碍儿童家长的支持需求:基于育儿护理框架的定性研究
Fei Li1,2, Qinling Li3, Qiao Shen1,2
1Department of Nursing, Children's Hospital of Chongqing Medical University, National Clinical Research Center for Child Health and Disorders, Ministry of Education Key Laboratory of Child Development and Disorders, Chongqing Key Laboratory of Child Neurodevelopment and Cognitive Disorders, Chongqing, China.
Journal of advanced nursing
|December 19, 2024
概括
在中国,自闭症儿童的父母需要得到更好的支持,包括知识,福祉,培训,社交网络和服务. 解决这些多维需求是制定有效家庭计划的关键.
科学领域:
- 儿童发展 儿童发展
- 公共卫生 公共卫生
- 心理学 心理学 心理学
背景情况:
- 自闭症谱系障碍 (ASD) 为家庭带来了独特的挑战.
- 育儿护理框架 (NCF) 提供了对儿童发展的综合方法.
- 了解父母的支持需求对于有效的干预至关重要.
研究的目的:
- 探索中国抚养自闭症谱系障碍 (ASD) 儿童的家长的支持需求.
- 应用育儿护理框架 (NCF) 来识别家长支持缺口.
- 为制定有针对性的家庭支持计划提供信息.
主要方法:
- 采用了一种描述性的定性研究设计.
- 面对面的个人采访与重庆的2-6岁自闭症儿童的14名父母进行了面对面的个人采访.
- 使用NVivo 12.0软件进行定向内容分析,以确定关键主题.
主要成果:
- 确定了五个关键的培养护理需求:知识获取,心理和身体健康,个性化护理人员技能培训,社会支持网络和可访问的协调服务.
- 父母表达了这些维度的未满足需求.
- 这些发现凸显了父母支持需求的复杂性.
结论:
- 患有自闭症儿童的父母经历了多维的未满足的培养护理需求.
- 有针对性的家庭支持计划必须解决这些具体组成部分.
- 优先考虑健康教育,家长赋权和心理支持至关重要.
- 跨部门协调和强大的社会支持网络至关重要.
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