儿童非传染性脑膜炎护理人员的负担和需求的经验:一种定性研究
Jiali Huang1, Xi Huang1, Ruru Liu2
1School of Ophthalmology and Optometry, Wenzhou Medical University, Wenzhou, 325027, China.
BMC nursing
|December 20, 2024
概括
患有非传染性脑膜炎 (NIU) 的儿童的护理人员经历了严重的痛苦,需要更好的支持系统. 解决他们的心理社会需求对于有效的以家庭为中心的护理至关重要.
科学领域:
- 儿科眼科医生 儿科眼科医生
- 心理社会护理 心理社会护理
- 家庭系统理论 家庭系统理论
背景情况:
- 儿童非传染性脑膜炎 (NIU) 需要长期治疗.
- 在NIU的研究集中在治疗上,对家庭影响的理解有限.
- 儿科NIU的护理人员负担和需求尚未得到充分探索.
研究的目的:
- 探索NIU儿童的护理人员的负担和需求.
- 为这些家庭提供针对性干预策略的数据.
主要方法:
- 与11名患有NIU儿童的照顾者进行了半结构化采访.
- 使用Colaizzi的七步方法分析数据.
- 使用NVivo软件进行的主题分析.
主要成果:
- 在微系统 (健康,情绪,心理) 中观察到的护理人员的痛苦和增长.
- 在中途系统 (金融,管理,社会化) 中注意到家庭生活方式的变化.
- 在宏观系统 (信息,医疗,社会) 中发现了软弱的支持系统.
结论:
- 患有NIU儿童的照顾者在他们的社会生态系统中面临着多方面的挑战.
- 医疗保健提供者必须解决护理人员的心理社会问题.
- 以家庭为中心的干预和支持系统对于照顾者应对至关重要.
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