牛皮关节炎优先设定伙伴关系:为未来的英国医疗服务提供提供提供患者和临床医生的信息考虑
Lija James1, Louise Hailey1, Christine Bundy2
1Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences (NDORMS), University of Oxford, Oxford, UK.
Rheumatology (Oxford, England)
|December 20, 2024
概括
患有牛皮关节炎 (PsA) 的患者在英国医疗保健服务中确定了关键的未满足需求. 关键主题包括风湿病学服务,初级保健导航,教育,整体护理和多样性,突出服务改进的领域.
科学领域:
- 类风湿病学 类风湿病学
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
背景情况:
- 牛皮关节炎 (PsA) 患者的体验和英国国家卫生服务 (NHS) 中的最佳服务供应尚未得到充分理解.
- 英国牛皮关节炎优先设定伙伴关系 (PsA PSP) 旨在确定牛皮关节炎医疗保健的未满足需求.
研究的目的:
- 为了确定PsA患者当前的医疗服务提供模式中的未满足需求.
- 报告在PSAPSP期间发现的卫生服务供应的重要方面.
主要方法:
- 2020年,在线调查向PSA患者,护理人员和临床医生分发.
- 内容分析用于分析与卫生服务提供相关的调查提交,这些调查内容超出了主要研究重点的范围.
主要成果:
- 审查了138份提交,其中118份 (86%) 专注于医疗服务提供.
- 出现了五个主要主题:风湿病学服务,初级保健导航,教育,整体护理以及种族,多样性和包容性.
- 风湿病学服务主题包括整合多学科护理,改善咨询线路的准入,并确保公平的治疗准入.
结论:
- 这五个已识别的主题为英国的PsA提供了对健康服务供应的关键见解.
- 这些发现可以指导政策制定者,医疗保健提供者和研究人员优先考虑努力,以满足患有PsA的个人的特定护理需求.
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