为年轻成年癌症幸存者开发康复计划,使用联合制作
Maria Aagesen1,2,3, Marc Sampedro Pilegaard4,5, Astrid Janssens6,7
1User Perspectives and Community-based Interventions, Department of Public Health, University of Southern Denmark, Odense, Denmark. maagesen@health.sdu.dk.
Research involvement and engagement
|December 20, 2024
概括
一个新的康复计划,年轻人采取行动,是为年轻成人癌症幸存者共同制作的,以提高自我效能和生活质量. 这个针对特定年龄段的项目解决了未满足的需求,并加强了生活参与.
科学领域:
- 在瘤学瘤学.
- 康复医学 康复医学 康复医学
- 精神瘤学 精神瘤学
背景情况:
- 年轻的成年癌症幸存者 (18-39岁) 经历了显著的生物心理社会晚期影响影响生活质量.
- 现有的康复服务缺乏针对这个人口群体的年龄特定计划,导致未满足的需求和自我效率降低.
- 迫切需要量身定制的干预措施来支持年轻成年人癌症后治疗.
研究的目的:
- 为年轻成人癌症幸存者共同制作和开发一个特定于年龄的,以市政府为基础的癌症康复计划.
- 为了提高年轻人的自我效能在管理晚期影响.
- 改善与健康相关的人群的生活质量.
主要方法:
- 从2019年9月到2023年6月,采用了三个阶段的联合制作框架.
- 方法包括文献审查,利益相关者咨询,以及与年轻成人癌症幸存者和专业人员的研讨会.
- 改进方案的指导是从每个发展阶段的发现.
主要成果:
- "年轻人采取行动"计划是基于社会认知和体验式学习理论的以人为本的方法开发的.
- 该计划具有强制性需求评估和目标设定组成部分,随后是针对日常生活,体育活动,心理问题,教育/工作,性,财务和社会支持的定制模块.
- 它主要以小组为基础,由跨学科团队在16周内交付.
结论:
- 一个全面的,以目标为导向的,以同行为基础的康复计划成功地为年轻成人癌症幸存者共同制作.
- 合作开发确保了该计划与幸存者的需求,偏好和上下文特异性保持一致.
- 该联合制作的项目显示出在临床实践中实现现实的和可行的高潜力.
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