自闭症注册程序的设计,方法和早期发现:ABBILAR项目
Hassan Shahrokhi1,2, Ayyoub Malek2,3, Sanaz Norouzi1,2
1Research Center of Psychiatry and Behavioral Sciences, Tabriz University of Medical Sciences, Tabriz, Iran.
Autism : the international journal of research and practice
|December 21, 2024
概括
伊朗的一个自闭症登记处记录了1120例病例,主要是被诊断为3至7岁之间的男性. 该计划提供了改善自闭症诊断和治疗服务的重要数据,特别是在资源较少的环境中.
科学领域:
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
- 儿科 儿科 儿科
背景情况:
- 自闭症谱系障碍 (ASD) 研究在全球范围内至关重要,但低收入和中等收入国家只有有限的注册程序.
- 在高收入国家建立了自闭症登记册,以促进数据共享和研究进步.
- 本研究解决了在资源有限的环境中需要ASD注册表模型的需求.
研究的目的:
- 在伊朗东阿塞拜疆省建立和描述自闭症谱系障碍 (ASD) 注册程序.
- 分析注册ASD病例的初始描述数据.
- 确定利用注册表数据用于政策和医疗保健改进的机会.
主要方法:
- 纳入标准:符合DSM-IV或DSM-5ASD标准的儿童和青少年 (<=18岁).
- 数据收集期:2015年1月至2023年12月,记录了1120起案件.
- 人口和诊断信息的描述性分析.
主要成果:
- 该登记册包括1120例病例,其中81.60%的男性被诊断为3至7岁之间的男性.
- 剖腹产 (73.56%) 和精神病学家 (85.49%) 的初步诊断是常见的.
- 根据DSM-IV,诊断包括自闭症障碍 (83%),阿斯伯格障碍 (3%) 和PDD-NOS (13%).
结论:
- 该ASD注册表为制定有效的诊断和治疗政策提供了基础.
- 将临床和治疗数据联系起来,可以为ASD提供更广泛的医疗保健策略.
- 该计划的设计和研究结果表明,该计划对其他低收入地区的可行性.
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