医疗复杂性儿童的家庭环境
Lora Batson1, Pamela K Donohue1,2, Mona-Esmat Jarrah1
1Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
患有医疗复杂性 (CMC) 的儿童的家庭适应家庭,以平衡医院的需求与正常感. 修改重点是安全,可访问性和维持家庭生活.
科学领域:
- 儿科健康 儿科健康
- 环境心理学 环境心理学
- 家庭照顾 家庭照顾
背景情况:
- 患有医疗复杂性 (CMC) 的儿童需要对家庭环境进行重大修改.
- 了解这些适应对于整体的家庭支持至关重要.
- 现有的研究往往忽视了家庭在塑造这些环境中的生活经验.
研究的目的:
- 描述医疗复杂性儿童 (CMC) 的家庭环境.
- 探索家庭如何调整家居以满足CMC的需求.
- 为了确定这些修改家庭环境的特征,确定关键主题.
主要方法:
- 使用了一种新的光声学方法.
- CMC的家长/监护人拍摄并讨论了他们的家庭环境.
- 传统的内容分析被应用于采访成绩单和照片.
主要成果:
- 家庭广泛修改了他们的家园,以优化健康,功能和福祉.
- 两个主要主题出现了:复制医院的功能/结构和保持家园的感觉.
- 修改包括确保可访问性,促进安全,组织供应/设备,并纳入自我表达,娱乐和舒适.
结论:
- 对于CMC来说,自制环境涉及医院功能与传统家庭美学之间的平衡.
- 了解这种相互作用对于儿科提供者来说至关重要.
- 对CMC及其护理人员的整体支持需要承认和支持他们对家庭环境的适应.
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