家庭的支持需求,有一个孩子深度智力和多重残疾
Siméon T A Lahaije1, Jorien Luijkx1, Aly Waninge2
1Faculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, The Netherlands.
International journal of developmental disabilities
|December 23, 2024
概括
照顾深度智力和多重残疾 (PIMD) 儿童的家庭需要量身定制的支持. 本研究确定了特定的,与年龄相关的需求,以改善这些家庭的服务.
科学领域:
- 关于残疾人的研究.
- 家庭支持服务 家庭支持服务
- 儿科医疗保健 儿科医疗保健
背景情况:
- 患有严重智力和多重残疾 (PIMD) 的儿童的家庭面临着管理普遍支持需求的重大挑战.
- 关于这些家庭的具体和年龄相关支持需求的现有知识是有限的和分散的.
研究的目的:
- 探索和确定抚养患有PIMD儿童的家庭的各种支持需求.
- 为了确定这些支持需求是否根据孩子的年龄而异.
主要方法:
- 对20名患有PIMD儿童 (3-26岁) 的父母进行的开放式采访的定性分析.
- 支持需求分为五个领域:患有PIMD的儿童,家庭,环境,服务和系统.
主要成果:
- 确定家庭所经历的各种支持需求,包括年龄相关的特定需求.
- 该研究强调了儿童,家庭,环境,服务和系统领域的独特需求.
结论:
- 研究结果为卫生专业人员和政策制定者提供了关键的见解,以加强对患有PIMD儿童的家庭的支持.
- 建议侧重于定制支持服务,以满足这些家庭的独特和不断变化的需求.
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