选择性沉默症和同时出现的自闭症儿童的家长观点
S Keville1, P Zormati1, A Shahid1
1Department of Psychology, Sport and Geography, University of Hertfordshire, College Lane, Hatfield, Herts, United Kingdom.
International journal of developmental disabilities
|December 23, 2024
概括
照顾有选择性无声症 (SM) 和自闭症的孩子面临着独特的挑战. 父母的经历突出了诊断延迟和系统性问题,强调需要更好的支持和理解.
科学领域:
- 心理学 心理学 心理学
- 儿童发展 儿童发展
- 临床心理学 临床心理学
背景情况:
- 选择性沉默症 (SM) 和自闭症谱系障碍 (ASD) 经常同时发生,加剧了社交沟通困难和焦虑.
- 有限的专业准备同时诊断SM和ASD需要了解父母的经验.
研究的目的:
- 探索父母照顾被诊断患有SM和ASD的孩子的实践经验.
- 在家庭中识别挑战和应对机制,以管理这些共同发生的情况.
主要方法:
- 利用解释性现象学分析 (IPA) 来检查父母的经历.
- 与12名父母 (11名母亲,1名父亲) 进行了半结构化访谈,这些父母的孩子年龄在5-18岁之间,正在接受自闭症诊断过程.
主要成果:
- 确定了关键主题:并发症的复杂性,MS的压倒性影响,诊断过程和宣传的作用.
- 系统性问题,包括由于症状最小化和教育和医疗保健系统缺乏理解而导致的诊断延迟,增加了父母的压力.
- 父母的倡导和支持的环境促进了孩子们对特定环境的默默症的管理.
结论:
- 改善识别和富有同情心的系统理解,让父母作为利益相关者参与,对于支持有孩子同时表现出SM和ASD的家庭至关重要.
- 解决复杂性和尽量减少诊断延迟可以减轻家长的压力,改善干预结果.
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