青少年和年轻人与病人导航员一起工作的过渡经验
Daniella San Martin-Feeney1, Sophie Samborn2, Brooke Allemang3,4,5
1Department of Pediatrics, University of Alberta, Edmonton, Canada.
Health care transitions
|December 23, 2024
概括
患者导航员 (PN) 帮助患有慢性疾病的青少年和年轻人 (AYA) 过渡到成人护理. 在这个关键阶段,PN提供了至关重要的支持,缓解了挑战,并促进了独立.
科学领域:
- 医疗保健管理的管理
- 青少年医学 青少年医学
- 慢性疾病 护理 慢性疾病 护理
背景情况:
- 从儿科到成人医疗保健的过渡给患有慢性疾病的青少年和年轻人 (AYA) 带来了重大挑战.
- 照顾者也面临困难,在这个过渡时期支持AYA.
- 正在探索患者导航器 (PN) 干预措施,以解决这些与过渡有关的障碍.
研究的目的:
- 在过渡到成人护理期间,对患有慢性疾病的AYA及其护理人员的经验和需求进行定性探索.
- 评估患者导航干预对减轻过渡障碍的影响.
主要方法:
- 一个定性研究被嵌入到一个务实的随机对照试验中.
- 一个具有多样性特征的AYA和他们的护理人员的有目的样本参与.
- 半结构面试和期刊条目使用诱导主题分析进行了分析.
主要成果:
- 基线采访揭示了关于离开儿科护理的不确定性以及对中学后教育的援助需求的主题.
- 干预后的采访强调了PN提供的情感支持,信息/任务专注援助以及独立指导的重要性.
- 在PN的干预中,解决了AYA在过渡期间发现的关键需求.
结论:
- 这些发现揭示了AYA在医疗保健转型期间的特定需求以及患者导航者的多方面的作用.
- 患者导航员的支持对于解决AYA面临的情感,信息和独立性相关挑战至关重要.
- 这项研究为实施PN计划提供了宝贵的见解,以改善患有慢性疾病的AYA的过渡护理.
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