住着一个口腔:儿童炎症性肠病的需求评估
Meghan K Ford1, Peter C Church2,3, Dean A Tripp1,4
1Department of Psychology, Queen's University, Kingston, Ontario, Canada.
Health care transitions
|December 23, 2024
概括
患有炎症性肠道疾病 (IBD) 的青少年接受骨手术需要整体护理,解决心理社会需求. 患者建议强调了在护理过渡期间获得支持的重要性,以获得积极的体验.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 青少年健康 青少年健康
- 心理社会瘤学 心理社会瘤学
背景情况:
- 炎症性肠病 (IBD) 带来了重大的心理社会挑战.
- 骨头外科手术是IBD的治疗选择,但心理社会影响,特别是对于青少年来说,是研究不足的.
- 青少年对骨外科手术的经验可能与成人经验有很大不同.
研究的目的:
- 探索IBD青少年及其护理人员关于口腔外科手术的观点和感知需求.
- 收集可以为IBD护理的临床实践提供信息的见解,并改善患者的治疗结果.
- 了解青少年接受或预期进行骨外科手术所面临的独特挑战.
主要方法:
- 从儿童医院的患者和护理人员有目的地采样样本.
- 与12名患者和13名护理人员进行了虚拟半结构面试.
- 诱导性内容分析用于分析定性数据.
主要成果:
- 出现了四个主要主题:对未知的恐惧,感知障碍,支持的重要性,以及为积极体验的建议.
- 参与者认为从儿科到成人护理的过渡特别令人恐惧.
- 一个支持和包容的移交过程对于促进这种过渡至关重要.
结论:
- 一个整体的方法是至关重要的,解决青少年骨髓瘤患者的身体,情感和社会需求.
- 以患者为导向的推可以增强对患有口腔切除的青少年的年龄特定护理.
- 改善过渡过程和提供全面支持是积极患者体验的关键.
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