为先天性上腺增生症提供全面的青少年医疗保健过渡计划:质量改善倡议
Jocelyn Dennis1, Leslie Pitts1, Leen Matalka2
1School of Nursing, The University of Alabama at Birmingham, 1701 University Blvd, Birmingham, AL 35294, United States.
Health care transitions
|December 23, 2024
概括
全面青少年医疗转型 (CAH-T) 计划改善了临床医师对先天性上腺增生症 (CAH) 青少年的医疗转型 (HCT) 服务的利用和接受. 障碍包括时间和EMR集成.
科学领域:
- 儿科内分泌学 儿科内分泌学
- 青少年健康 青少年健康
- 提高质量 提高科学 提高质量
背景情况:
- 先天性上腺增生 (CAH) 需要终身治疗,并对青少年医疗保健过渡 (HCT) 提出挑战.
- 许多患有CAH的青少年经历了不充分的HCT,导致后续护理不佳.
- 综合青少年医疗转型 (CAH-T) 计划是为了解决这些差距而制定的.
研究的目的:
- 评估临床医生对CAH-T程序的使用和接受.
- 评估该计划对儿童内分泌诊所中患有CAH的青少年的HCT的影响.
主要方法:
- 通过调查进行质量改进计划 (医疗保健过渡反调查临床医生,医疗保健过渡活动的当前评估).
- 关于CAH-T程序和患者材料的临床医生教育.
- 对CAH-T干预措施的文件编制和实施后对调查的重新评估.
主要成果:
- 临床医生接受和利用HCT服务显著增加 (p=0.018).
- 医疗保健过渡活动当前评估的分数从15.29上升到24.00.
- 临床医生报告的障碍包括时间限制,材料中的语言限制以及缺乏EMR集成.
结论:
- 像CAH-T这样的结构化HCT计划对于支持CAH青少年至关重要.
- 该CAH-T计划是开发和实施HCT倡议的典范.
- 电子医疗记录的整合对于此类计划的长期可持续性至关重要.
相关概念视频
Primary Healthcare Services
1.3K
Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
1.3K
Adrenal Gland Disorders
1.3K
Adrenal gland disorders manifest when the production of adrenal hormones deviates from the norm, resulting in either excessive or insufficient concentrations.
Adrenal insufficiency, characterized by insufficient cortisol and aldosterone production, leads to conditions like Addison's disease. This disorder, affecting the adrenal cortex, exhibits symptoms such as skin bronzing, dehydration, low blood pressure, fatigue, and weight loss. Congenital adrenal hyperplasia, a genetic ailment causing...
Adrenal insufficiency, characterized by insufficient cortisol and aldosterone production, leads to conditions like Addison's disease. This disorder, affecting the adrenal cortex, exhibits symptoms such as skin bronzing, dehydration, low blood pressure, fatigue, and weight loss. Congenital adrenal hyperplasia, a genetic ailment causing...
1.3K
Cystic Fibrosis: Management
139
Cystic fibrosis (CF) is an autosomal recessive disorder that predominantly affects individuals of Northern European descent, occurring at a rate of 1 in 3500. It is caused by a genetic mutation in a gene on chromosome 7, most commonly the ΔF508 mutation, that codes for the cystic fibrosis transmembrane conductance regulator (CFTR) protein. This results in thicker mucus secretions and obstruction pathologies in multiple organs, including the lungs and sinuses.
Sinus disease and chronic...
Sinus disease and chronic...
139
Integrated Healthcare System
1.5K
An integrated healthcare system (IHS) is a set of organizations that provides for or arranges to provide coordinated and continuous service to a defined population. The IHS takes responsibility for that particular population's health status and outcome, both clinically and fiscally. An integrated healthcare system is a well-organized, well-coordinated, and collaborative network. The integrated delivery system is a network that connects different healthcare providers to deliver organized,...
1.5K
Secondary Healthcare System
1.4K
Secondary healthcare is offered by a specialist, generally in hospitals or clinics for patients referred by primary healthcare providers. It occurs when a person has an illness or injury that requires specific medical care. Secondary care is often referred to as acute care. Secondary care can range from uncomplicated care to repair a minor laceration or treat a strep throat infection to more complicated emergent care, such as treating a head injury sustained in an automobile accident. Whatever...
1.4K
Chronic Pancreatitis II: Collaborative Care
70
The management of chronic pancreatitis is multifaceted, involving a comprehensive approach that includes thorough assessment, diagnostic testing, and a variety of management strategies.
Assessment:
Assessment:
70


