一个状细胞疾病过渡诊所的初步结果
Katheryne Madrazo-Aguirre1, Jean-Antoine Ribeil1,2, Amy E Sobota1,3
1Boston University Chobanian & Avedisian School of Medicine, Boston, MA.
Health care transitions
|December 23, 2024
概括
一个多学科的过渡诊所有效地为患有状细胞疾病 (SCD) 的年轻人准备成人护理. 与成人提供者会面缓解了患者对管理SCD和转型护理的担忧.
科学领域:
- 血液学 血液学 血液学
- 儿科 儿科 儿科
- 成人医学 成人医学 成人医学
背景情况:
- 对于状细胞病 (SCD) 患者,从儿科到成人护理的过渡带来了挑战,包括医疗保健利用率,成本和死亡风险的增加.
- 有效的准备对于减轻这些风险和确保护理的连续性至关重要.
- 成立了一个多学科的过渡诊所,以促进这一过程.
研究的目的:
- 评估一个多学科过渡诊所在为SCD的年轻人准备成人护理方面的有效性.
- 在过渡期评估患者参与度并确定关键问题.
主要方法:
- 在2021年9月至2023年5月期间参加过渡诊所的患者 (年龄20-27岁) 的图表审查.
- 数据收集包括访问频率,讨论的主题和患者对过渡的态度.
- 分析患者对过渡过程的担忧和感受.
主要成果:
- 82%的患者 (共22人) 使用过渡诊所.
- 大多数患者在他们的最后一次过渡访问后的2.4个月内参加了他们的第一个成人护理访问.
- 患者的主要担忧包括药物坚持 (基尿素),生殖健康和教育支持;讨论减轻了焦虑.
结论:
- 一个协作过渡诊所模型成功地为患有SCD的年轻人准备成人护理.
- 早期引入成人SCD提供者显著减轻了患者的担忧.
- 未来的研究将重点关注长期患者融入成人护理机构.
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