为患有状细胞病的青少年开发一个过渡工作坊.
James Bradley1,2, Zelyn Lee1, Melina Cheong1,3
1Hemoglobinopathy Clinic, Division of Haematology/Oncology, The Hospital for Sick Children, 555 University Ave., Toronto, ON, M5G 1X8, Canada.
Health care transitions
|December 23, 2024
概括
患有状细胞疾病 (SCD) 的青少年和年轻人需要更好的培训,以便过渡到成人护理. 一个虚拟研讨会提高了他们对管理预约和导航成人医疗保健系统的信心.
科学领域:
- 健康研究成果研究结果
- 青少年医学 青少年医学
- 改善医疗保健的质量.
背景情况:
- 对于患有状细胞疾病 (SCD) 的青少年和年轻成年人 (AYA) 来说,从儿科到成人护理的过渡具有挑战性.
- 关键的自我管理和与过渡有关的技能往往被教得不够好.
- 这种差距影响了SCD的AYA的健康结果.
研究的目的:
- 为了确定特定疾病的自我管理技能,AYA与SCD感到没有准备.
- 设计和评估一个教育计划,解决这些识别的技能差距.
主要方法:
- 一项质量改进 (QI) 研究使用了计划-做-研究-行动 (PDSA) 模型.
- 患者调查确定了优先的自我管理技能.
- 开发并提供了一个虚拟研讨会,并通过电子方式收集反.
主要成果:
- "导航成人医疗保健系统"是AYA (n=39) 发现的顶级技能缺口.
- 虚拟研讨会被79%的参与者评为优秀,其中"预约管理"被高度评价.
- 参与者报告说,在导航成人护理方面,信心 (71%) 和意识 (86%) 增加了.
结论:
- 一个虚拟研讨会有效地解决了AYA与SCD的过渡技能差距.
- PDSA框架促进了特定教育需求的识别.
- 这种方法可以在已建立的过渡计划中增强患者教育.
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