一个混合方法研究自闭症成年人的医疗独立性随着时间的推移
Daniel Gilmore1, Deondray Radford1, Alex Coyne1
1School of Health and Rehabilitation Sciences at The Ohio State University, 453 W 10th Ave., Columbus, OH 43210, United States.
Health care transitions
|December 23, 2024
概括
随着时间的推移,自闭症年轻人表现出更好的医疗独立性,特别是在自我管理技能方面. 诸如供应商互动和支持需求等因素影响了这些变化,突出了对量身定制策略的需求.
科学领域:
- 自闭症研究的研究.
- 医疗保健管理的管理
- 医疗服务研究 医疗服务研究
背景情况:
- 医疗保健独立性涉及管理健康的技能,对自闭症年轻人来说至关重要.
- 了解这种独立性是为自闭症患者创造公平的医疗保健系统的关键.
研究的目的:
- 测量自闭症成年人随着时间的推移在医疗保健独立性的变化.
- 确定影响医疗独立性变化的因素.
主要方法:
- 过渡准备评估问卷 (TRAQ) 用于自闭症年轻成年人的自我和代理报告.
- 数据在基线,6个月和12个月收集,并进行后续访谈以获得更深入的见解.
主要成果:
- 自我报告的医疗保健独立性在自闭症年轻人中在12个月内显著增加.
- 代理报告显示变化不那么显著,活动管理有所改善.
- 变化与提供者互动,健康状况,支持需求和社区资源有关.
结论:
- 一些自闭症年轻人提高了医疗保健独立性,而另一些人则需要更多的支持.
- 需要对更大样本进行进一步的研究,以获得关于自闭症成年人医疗独立性的概括性发现.
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