父母与青少年的互动:在脊柱裂患者中过渡到所自我管理
Tae Kawahara1, Akemi Yamazaki1
1Department of Pediatric and Family Nursing, Division of Health Sciences, Graduate School of Medicine, Osaka University, 1-7 Yamadaoka, Suita City, Osaka 565-0871, Japan.
Health care transitions
|December 23, 2024
概括
父母和患有脊柱裂 (SB) 的青少年合作过渡膀和肠道管理. 这种"分享,尝试和决定"的方法使年轻人能够自我管理,在关键的发展阶段培养独立性.
科学领域:
- 儿科泌尿外科 儿科泌尿外科
- 发展心理学 发展心理学
- 康复医学 康复医学 康复医学
背景情况:
- 脊柱裂 (SB) 经常导致神经性膀和肠道功能障碍.
- 有效管理这些情况对于SB患者的生活质量至关重要.
- 从父母到青少年的自我管理过渡是一个关键的发展里程碑.
研究的目的:
- 探索父母与青年的互动,在过渡期间,膀和肠道管理责任在青年与SB.
- 了解这种过渡阶段的经验,这种过渡阶段的特点是年轻人越来越自主.
主要方法:
- 对12对父母-青少年 (年龄在11-18岁的青少年与SB) 进行了二次面试.
- 基于理论的方法被用来分析父母-青少年过渡经验.
- 专注于父母与青少年互动的背景.
主要成果:
- 父母提供全面的管理,直到年轻人达到身体和精神的成熟.
- 在过渡期间,一个协作式的"分享,尝试和决定"模式促进了年轻人的自我管理.
- 年轻人最终实现了独立的膀和肠道管理.
结论:
- 父母与青少年之间的关系对于在过渡阶段促进独立至关重要.
- 在此期间,有针对性的干预措施可以支持自我管理技能的发展.
- 成功过渡可以增强SB患者的长期独立性和福祉.
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