关于IBD年轻成年人的圆桌会议:对当前的过渡挑战和研究差距的多利益相关者视角和患者驱动的分析
Sneha Dave1, Sydney Reed1, Kajal Patel2
1Generation Patient, USA.
Health care transitions
|December 23, 2024
概括
关于患有IBD的年轻成年人圆桌会议通过解决儿童至成人医疗保健过渡的挑战来加强护理. 关键问题包括发育里程碑,饮食失调以及IBD年轻成年人的健康社会决定因素.
科学领域:
- 胃肠病学 胃肠病学
- 儿科医疗保健 儿科医疗保健
- 年轻人的健康年轻人的健康
背景情况:
- 炎症性肠病 (IBD) 影响了大量的年轻成年人群.
- 从儿科转向以成人为中心的护理对患有IBD的年轻成年人来说带来了独特的挑战.
- 现有的护理模式可能无法充分满足这一群体的特定需求.
研究的目的:
- 改善IBD的年轻成年人的健康结果.
- 在IBD患者的儿科到成人护理过渡期间识别和解决关键问题.
- 促进提供者,患者和医疗保健合作伙伴的协作学习环境.
主要方法:
- 一个长达一年的学习社区,每月都有讨论.
- 医疗保健提供者,患者和医疗保健合作伙伴的参与.
- 专注于从儿科到成人IBD护理的过渡阶段.
主要成果:
- 确定了针对年轻成人IBD患者的发展里程碑的需要.
- 强调了在这个人群中查饮食失调的重要性.
- 强调了儿童和成人护理提供者和专家之间合作的必要性.
- 认可的挑战包括社交媒体错误信息和健康的社会决定因素.
- 承认与IBD相关的潜在终身心理,社会,精神和经济负担.
结论:
- 改善患有IBD的年轻成年人的护理需要采用多方面的方法.
- 解决过渡期对于长期患者的治疗结果至关重要.
- 考虑心理社会和社会经济因素的综合护理模式至关重要.
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