在日本,以患者为中心的方法通过QR码实现个性化电子医疗记录
Yoshihiko Izumida1, Takashi Omura1, Masahiro Fujiwara2
1Department of Endocrinology and Diabetes, Saitama Medical Center, Saitama Medical University, Kawagoe, Saitama, Japan.
Interactive journal of medical research
|December 23, 2024
概括
这项研究展示了以患者为中心的精准医学数据流模型,增强了数字健康的信任和互操作性. 通过Sync for Science-J系统,成功共享电子医疗记录和患者生成的健康数据,促进开放科学.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 精准医学是一门精准的医学.
背景情况:
- 全球政策促进 FAIR 数据原则,以增强对数字卫生系统的信任.
- 互操作性和数据可访问性对于数字健康技术的创新至关重要.
- 以患者为中心的数据流模型对于成功实施数字卫生系统至关重要.
研究的目的:
- 为了证明以患者为中心的数据流模型的可行性,以实现精确医疗信息的语义互操作性.
- 引入Sync for Science-J (S4S-J) 系统,作为连接电子医疗记录 (EMR) 和个人健康记录 (PHR) 的解决方案.
- 支持基于个人信息信念的数据共享,并解锁具有隐私控制的封闭系统.
主要方法:
- 开发了Sync for Science-J (S4S-J),一个符合健康7级快速医疗互操作资源 (HL7 FHIR) 的互操作界面,并使用逻辑观察标识符名称和代码 (LOINC).
- 实施了以患者为中心的数据流模型,控制EMR和患者生成的健康数据的数据分布,并将其转换为可扫描的QR码.
- 使用M♡Link移动健康应用程序与S4S-J接口进行了一项多中心,随机控制的临床试验 (EMBRACE研究).
主要成果:
- 成功实施HL7 FHIR系统和LOINC数据映射,解决数据标准化的新挑战.
- 在授权医疗机构和医疗保健提供者之间分享EMR集成的患者生成的健康数据方面取得了初步成功,尊重患者的偏好.
- 展示了以患者为中心的数据流模型的可行性,以促进精确医疗信息的语义互操作性.
结论:
- 日本的S4S-J系统促进了安全和患者控制的数据共享,增强了数字健康领域的信任和互操作性.
- 以患者为中心的数据流模型促进了数据可移植性,最大限度地提高了患者的利益,并为开放科学做出了贡献.
- 成功实施S4S-J支持医疗数据的二次使用,用于工业,医疗保健服务和研究.
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