在昼夜节律和心理健康研究中的数据共享:当前状态,挑战,建议和未来方向
Haya Deeb1, Tomasz Zieliński1, Andrew J Millar2
1Centre for Engineering Biology and School of Biological Sciences, University of Edinburgh, Edinburgh, UK.
BMJ mental health
|December 23, 2024
概括
在昼夜和心理健康研究中数据共享是有限的,尽管有政策. 关键障碍包括数据复杂性,隐私问题和学术文化. 改善数据共享需要培训和更好的数据管理计划.
科学领域:
- 循环生物和心理健康研究.
背景情况:
- 数据共享对于科学合作,可重复性和透明度至关重要.
- 昼夜节律研究涉及复杂的,异质的数据 (分子,生理,临床,传感器).
- 英国的资助者要求共享数据,但采用率仍然很低.
研究的目的:
- 评估目前在昼夜和心理健康研究中数据共享的现状.
- 识别阻碍数据共享实践的障碍.
- 为研究人员提供关于有限数据共享的见解.
主要方法:
- 分析英国循环精神健康网络 (CMHN) 中的出版物.
- 包括来自多个国家的数据.
- 从主要调查人员收集的见解.
主要成果:
- 在昼夜和心理健康研究中的数据共享是有限的.
- 主要障碍包括数据复杂性,隐私,伦理问题,技术挑战和学术文化.
- 研究人员的观点强调了文化和实际障碍.
结论:
- 应对数据共享挑战需要培养开放的文化.
- 策略包括研究人员培训 (例如,FAIR原则),积极的道德和数据管理规划,以及将数据输出整合到研究评估中.
- CMHN计划提供培训,数据策划和伦理指南,以改善数据共享.
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