患有喘的儿童和他们的父母对喘控制的看法不同
Sara Bousema1, Miranda E van Zwet1, Ieteke Ossendrijver1
1Department of General Practice, Erasmus MC, University Medical Centre Rotterdam, Rotterdam, The Netherlands.
Pediatric pulmonology
|December 24, 2024
概括
父母始终比孩子自己更高地评价孩子的喘控制,强调了孩子在喘管理中的观点的重要性.
科学领域:
- 儿科肺病学 儿科肺病学
- 儿童健康结果的结果
- 喘管理 喘管理
背景情况:
- 喘是儿童在初级保健机构中最常见的慢性疾病.
- 儿童喘控制测试 (C-ACT) 通过儿童和家长问卷来评估喘控制.
- 儿童和父母对控制喘的看法之间经常存在差异.
研究的目的:
- 纵向确定使用C-ACT的儿童和他们的父母之间的喘控制感知差异.
- 在初级保健环境中,分析了五个时间点中的这些感知差异.
主要方法:
- 一项纵向研究涉及90名患有喘的儿童 (6-12岁) 和他们的父母.
- 从鹿特丹喘试验 (基线至18个月) 通过电子问卷收集的数据.
- 分析包括斯皮尔曼的相关系数和类内相关系数 (ICC),以评估C-ACT分数的一致性和差异.
主要成果:
- 在整个研究期间,儿童报告的C-ACT得分明显低于他们的父母 (p < 0.001).
- 斯皮尔曼的相关性表明,儿童和家长分数之间的中度至强度一致 (0.659-0.775).
- 类内相关系数 (ICC) 显示出良好的一致性 (0.750-0.813).
结论:
- 与孩子相比,家长对C-ACT项目的分数始终较高.
- 纳入孩子对其症状的主观经验对于有效的喘治疗决策至关重要.
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