多发性硬化症疲劳自我管理:多模式干预5年后的策略和影响因素
ShienPei C Silverman1, Bishan Yang2, Felicia Mata-Greve2
1From the Research Department, Veterans Affairs Portland Health Care System, Portland, OR.
International journal of MS care
|December 25, 2024
概括
患有多发性硬化症 (MS) 的人经常使用计划和优先级来管理疲劳. 内部动机和低成本策略是成功长期自我管理的关键.
科学领域:
- 神经学 神经学
- 康复科学 康复科学 康复科学
背景情况:
- 疲劳:掌控 (FTC) 计划是一个多式模式的自我管理干预,用于多发性硬化症 (MS).
- 之前的试验证明了FTC在改善MS相关疲劳方面的有效性.
- 本研究研究了MS患者的长期 (5年) 疲劳管理策略.
研究的目的:
- 确定MS患者在FTC计划入学5年后使用的疲劳管理策略.
- 确定使用这些疲劳管理策略的促进者和障碍者.
- 探索特定策略与长期疲劳结果之间的关系.
主要方法:
- 采用原始FTC临床试验参与者的数据进行横截面调查设计.
- 管理了修改后的疲劳影响量表和关于疲劳管理策略的17项问卷.
- 分析了使用描述性统计和内容分析的定量和定性数据,以COM-B模型为框架.
主要成果:
- 报告中最常见的策略是规划日常活动和确定任务优先级.
- 促进者包括获得辅助设备,支持系统 (付费帮助,伴侣) 和积极态度.
- 障碍包括高成本,并存的健康状况和温度敏感性.
结论:
- 未来的研究应该优先推广可访问的,低成本的疲劳管理策略,为MS.
- 内部因素,如动机,显著影响采用自我管理策略.
- 建议使用更大的样本进行进一步的临床试验,以验证在MS疲劳管理中COM-B模型.
相关概念视频
Stress Prevention and Stress Management Techniques VI
15
Adopting a healthier lifestyle often requires overcoming significant challenges, but leveraging psychological, social, and cultural resources can facilitate meaningful change. Effective self-change hinges on understanding and applying key tools such as motivation and goal setting, which help sustain efforts toward long-term health benefits.
Motivation and Self-Determination
Motivation, the driving force behind behavior, plays a pivotal role at every stage of the change process. The research...
Motivation and Self-Determination
Motivation, the driving force behind behavior, plays a pivotal role at every stage of the change process. The research...
15
Asthma-IV: Nursing Management
2.9K
The nursing management of asthma is a comprehensive approach that relies heavily on the expertise and dedication of healthcare professionals. It involves thorough assessment, accurate diagnosis, strategic planning, effective implementation, and diligent evaluation. By meticulously following this step-by-step process, healthcare professionals play a crucial role in providing the best possible care and treatment for patients with asthma, enhancing their overall health and well-being.
First, in...
First, in...
2.9K
Stress Prevention and Stress Management Techniques I
17
Stress prevention and management are crucial for maintaining well-being and building resilience. Techniques to manage stress include cultivating qualities like conscientiousness, a sense of personal control, and self-efficacy. Each of these traits significantly reduces stress and promotes healthier lifestyle choices and outcomes.
Conscientiousness
Conscientious individuals tend to be organized, responsible, and disciplined. They prioritize completing tasks and following structured routines,...
Conscientiousness
Conscientious individuals tend to be organized, responsible, and disciplined. They prioritize completing tasks and following structured routines,...
17
Chronic Obstructive Pulmonary Disease-V: Nursing Management
3.4K
Nursing management of Chronic Obstructive Pulmonary Disease (COPD) is crucial for providing thorough care and support to patients. Nurses play an integral role in this process through detailed assessment, careful planning, targeted interventions, and ongoing evaluation. Here's an overview of the critical steps in nursing management for COPD.
Assessment
Assessment
3.4K
Coping Strategies: Problem Focused
15
Coping strategies are methods people use to manage, tolerate, or reduce the effects of stressors. These strategies involve both behavioral and psychological actions to handle stressful situations. One common approach is problem-focused coping, which aims to change or eliminate the source of stress rather than merely addressing its consequences. This method involves taking direct action to resolve the issue causing stress.
For example, consider a student who struggles to understand their...
For example, consider a student who struggles to understand their...
15


