"这只是很好的科学":在加拿大关节炎研究中探索公平,多样性和包容性的定性研究
Megan M Thomas1, Mark Harrison2, Cheryl Barnabe3
1The University of British Columbia and Arthritis Research Canada, Vancouver, British Columbia, Canada.
Arthritis care & research
|December 27, 2024
概括
在关节炎研究中包括代表性不足的人群对于公平的护理至关重要. 消除障碍和促进伙伴关系可以改善所有关节炎患者的多样性和健康结果.
科学领域:
- 风湿病学和免疫学
- 医疗服务研究 医疗服务研究
- 卫生公平性健康公平性
背景情况:
- 关节炎的健康结果根据患者的特征,身份和地理位置而有很大差异.
- 代表性不足的人群仍然是一个挑战,要将其纳入关节炎研究.
- 公平,多样性和包容 (EDI) 原则对于综合性关节炎研究至关重要.
研究的目的:
- 探索加拿大研究人员如何将EDI原则集成到他们的关节炎研究中.
- 了解在关节炎研究中实施EDI的感知好处,障碍和促进者.
主要方法:
- 对22名加拿大有关节炎研究经验的研究人员进行半结构面试.
- 使用有目的和受访者驱动的抽样来招募参与者.
- 将模板分析应用于采访成绩单,以确定与EDI相关的主题.
主要成果:
- 在关节炎研究中缺乏代表性,阻碍了全面的患者护理.
- 确定的主要主题包括利益 (知识生成,减少差距),障碍 (不信任,后勤挑战) 和促进者 (伙伴关系,多元化团队,资金).
- 早期考虑EDI对于有影响力的关节炎研究至关重要.
结论:
- 加强关节炎研究中的代表性是必要的,以改善不同患者群体的健康结果.
- 解决已识别的障碍和促进伙伴关系是朝着在加拿大关节炎研究中实现更大的EDI的关键步骤.
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