聋盲的父母的实践经验 - - 不是'公园里散步'的
Agneta Anderzén-Carlsson1,2, Karina Huus3, Maria Björk3
1University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden.
Disability and rehabilitation
|December 27, 2024
概括
作为聋盲的父母,面临着挑战,但有回报. 父母需要服务提供量身定制的支持,以充分拥抱他们的父母角色和家庭生活.
科学领域:
- 育儿与家庭研究
- 关于残疾人的研究.
- 定性研究是指质量研究.
背景情况:
- 聋盲症给个人和家庭带来了独特的挑战.
- 了解患有聋盲的父母的生活经历对于有效的支持至关重要.
研究的目的:
- 探索和描述聋盲父母在育儿和家庭生活中的经历.
- 为了确定促进者和障碍物,以履行父母的角色,对于有聋盲的个人.
主要方法:
- 定性采访研究涉及14名聋盲父母 (10名母亲).
- 通过深入采访收集的数据.
- 分析采用了诱导性的定性内容分析.
主要成果:
- 总体主题:"作为一个聋盲的父母,过上家庭生活不是公园里的散步,但它是有回报的".
- 关键的子主题包括感知能力,需要支持,以及与聋盲相关的斗争.
- 父母经历的喜悦与责任和支持的局限性交织在一起.
结论:
- 患有聋盲的父母是一个复杂的,有价值的经验,往往需要外部支持.
- 社会,医疗保健和康复服务的定制支持是必不可少的.
- 让聋盲父母能够积极参与家庭生活需要足够的资源和住宿.
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