呼吁提供有关的更好的信息:亲属的视角
Frida Knutstad Rusten1, Karl O Nakken2, Morten I Lossius3
1Medical Faculty, University of Oslo, Oslo, Norway.
Seizure
|December 27, 2024
概括
大多数挪威近亲 (NK) 与患者 (PWE) 寻求更多关于的信息. 缺乏信息与这些照顾者的心理压力增加有关.
科学领域:
- 神经学 神经学
- 公共卫生 公共卫生
- 心理学 心理学 心理学
背景情况:
- 患者 (PWE) 的近亲 (NK) 在疾病管理中发挥着至关重要的作用.
- 在 NK 之间知识不足可能会对医疗保健利用和社会对的态度产生负面影响.
研究的目的:
- 评估挪威NK向PWE寻求并收到有关相关问题的信息的程度.
- 为了确定这个护理人员群体内的特定信息缺口和需求.
主要方法:
- 在访问挪威协会主页的NK时,分发了一份在线问卷.
- 在五个月的时间里,从231名受访者收集了数据.
主要成果:
- 近90%的NK希望获得更多关于的信息,包括发作管理和死亡率.
- 高度的心理痛苦与更需要全面的信息的需求有关.
- 信息差距在42%至88%之间,取决于主题,照顾得到良好控制的PWE的照顾者报告的关于管理和心理健康的信息较少.
结论:
- 大多数挪威NK to PWE公司都积极寻求更多和更好的信息.
- 被认为缺乏信息与护理人员的情绪困扰有关.
- 医疗保健专业人员应该解决这些信息缺陷,以更好地支持PWE及其家人.
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