多方利益相关者对兄弟姐妹在孩子患重病时的经历的观点:定性系统性审查
Jessica Appleyard1, Beverley Copnell2, Alyssia Haling3
1La Trobe University, School of Nursing and Midwifery, Judith Lumley Centre, Bundoora, Australia; The Royal Children's Hospital, Paediatric Intensive Care Unit, Parkville, Australia; Murdoch Children's Research Institute, Paediatric Intensive Care Unit, Parkville, Australia.
Intensive & critical care nursing
|December 29, 2024
概括
重症儿童的兄弟姐妹面临着重大影响,包括分离和角色变化. 了解他们的经历对于在儿科重症监护室开发更好的以家庭为中心的护理至关重要.
科学领域:
- 儿科重症监护研究研究.
- 儿童心理学 儿童心理学
- 家庭为中心的护理.
背景情况:
- 儿童的重症严重影响家庭,但兄弟姐妹的经历受到研究不足.
- 之前的研究集中在父母和重症儿童身上,在理解兄弟姐妹的观点方面留下了差距.
研究的目的:
- 系统地审查和综合关于兄弟姐妹的经验的定性研究,他们的孩子患有严重疾病.
- 从兄弟姐妹和关键利益相关者的角度探索这些经验.
主要方法:
- 对6个数据库和3个灰色文献来源进行了全面的系统搜索.
- 包含了专注于兄弟姐妹在儿童重症期间经历的定性研究,并使用专题分析进行了综合分析.
- 数据提取和质量评估由两位独立审查员严格执行.
主要成果:
- 24项研究符合纳入标准,揭示了兄弟姐妹经历的八个关键主题.
- 主题包括访问重症监护室 (ICU),与家庭分离,改变家庭角色,未来前景和支持系统.
- 兄弟姐妹的经历受到父母,医疗保健专业人员和医院政策的影响.
结论:
- 这篇综述强调了重症儿童对兄弟姐妹的重大,多方面的影响.
- 有必要对兄弟姐妹的观点进行更多的研究,以告知支持性干预.
- 加强整体的,以家庭为中心的护理需要制定包容性政策和指导方针,以帮助在重症监护机构中的兄弟姐妹.
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