囊性纤维化患者的息护理需求:医院调查
Geana Paula Kurita1,2, Inge Eidemak3, Tacjana Pressier4
1Section of Palliative Medicine, Department of Oncology and Department of Anaesthesiology, Pain and Respiratory Support, Rigshospitalet, Kobenhavn, Denmark.
囊性纤维化 (CF) 患者的生活质量显著下降,疲劳,焦虑和抑郁的高率. 建议将息治疗纳入常规CF管理中,以解决这些繁重的症状.
科学领域:
- 肺部医学 肺部医学
- 抚慰性护理是一种缓解性护理.
- 临床心理学 临床心理学
背景情况:
- 囊性纤维化 (CF) 是一种进展性,不可治愈的多器官疾病,具有显著的症状负担.
- 了解息护理需求对于改善CF患者的治疗结果至关重要.
研究的目的:
- 探索囊性纤维化患者的息护理需求.
- 专注于与健康相关的生活质量 (HRQOL),疲劳,焦虑和抑郁.
主要方法:
- 从2019年10月到2020年3月进行的跨部门问卷调查.
- 参与的是丹麦大学医院传染病医学诊所的CF门诊患者.
主要成果:
- 130名CF患者完成了调查;平均年龄35.5岁.
- 与丹麦人口相比,CF患者报告HRQOL (一般健康,活力,社会功能,角色情绪,心理健康) 较低.
- 观察到疲劳 (平均分数为50.9),焦虑 (33%) 和抑郁 (19.5%) 的高患病率.
结论:
- 患有CF的患者表现出低HRQOL和显著的疲劳,焦虑和抑郁.
- 系统评估和息护理的整合对于常规的CF护理至关重要.
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