针对状细胞病患者的网络教育资源:可用性和可靠性
Dalal Mahmoud Alabdulmohsen1, Sarah Khalid Alfuhaydi2, Abdullah Mohamed Al Saloum3
1Department of Medicine, College of Medicine, King Faisal University, Alahsa, Saudi Arabia.
这项研究评估了针对状细胞病 (SCD) 患者的阿拉伯网站. 大多数网站缺乏关于预防的信息,可靠性也很低,这表明需要更好的阿拉伯SCD教育资源.
科学领域:
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
- 遗传学 是一个遗传学.
背景情况:
- 状细胞病 (SCD) 在中东普遍存在,阿拉伯语是主要语言.
- 有效的患者管理和改善的结果依赖于全面的健康教育.
- 对于SCD患者来说,在高质量,可信的阿拉伯在线健康资源中存在着公认的不足.
研究的目的:
- 量化和评估针对状细胞病 (SCD) 患者的阿拉伯语网络教育材料的质量.
- 提供对现有在线资源的标准化评估.
- 发现信息缺口,特别是关于疾病预防的信息缺口.
主要方法:
- 一项回顾性,描述性研究分析了27个与SCD相关的阿拉伯网站.
- 使用Discern仪器和JAMA基准来进行质量和可靠性评估.
- 评估网站内容,包括疾病定义,表现,治疗和预防策略.
主要成果:
- 所有网站都定义了SCD,但只有44.44%讨论了预防 (婚前查/咨询).
- 11个网站 (40.74%) 的质量低 (Discern评分),25个网站 (92.59%) 的可靠性低 (JAMA评分).
- 在Discern和JAMA分数之间发现了微弱的正相关性 (0.19);根据搜索结果页面的分数没有显著差异.
结论:
- 对于SCD患者来说,高质量,可靠的阿拉伯语在线资源非常稀缺.
- 现有的网站往往缺乏关于预防疾病的关键信息.
- 加强阿拉伯语在线教育内容对于改善患者护理和SCD管理结果至关重要.
更多相关视频
05:23Continuous Manual Exchange Transfusion for Patients with Sickle Cell Disease: An Efficient Method to Avoid Iron Overload
Published on: March 14, 2017
08:23Characterization of Sickling During Controlled Automated Deoxygenation with Oxygen Gradient Ektacytometry
Published on: November 5, 2019
相关概念视频
Bone Marrow Sampling and Transplants
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy...
Health Literacy
iPS Cell Differentiation
Nursing Clinical Information System
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
Issues And Trends In Healthcare Delivery System
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Stem Cell Therapy for Tissue Regeneration
Types of Stem Cells used in Stem Cell Therapy
The two main cell...
