流行病学家应该如何应对数据种族灭绝?
Abigail Echo-Hawk1, Sofia Locklear2, Sarah McNally3
1Executive vice president of the Seattle Indian Health Board and director of the Urban Indian Health Institute.
AMA journal of ethics
|January 2, 2025
概括
美国联邦数据系统中的殖民实践损害了美国印第安人/阿拉斯加原住民 (AI/AN) 人口的数据质量. 改善AI/AN健康研究需要在数据收集和分析中解决偏见和种族主义报告.
科学领域:
- 公共卫生 公共卫生
- 流行病学 流行病学
- 健康 公平 卫生 公平
背景情况:
- 美国联邦数据系统包含了根深蒂固的殖民实践.
- 这些做法破坏了美国印第安人/阿拉斯加原住民 (AI/AN) 人口的数据质量.
- 历史和持续的偏见影响AI/AN健康研究.
研究的目的:
- 证明AI/AN健康研究中对包容性,多样性和准确数据的伦理和临床需求.
- 突出殖民实践如何影响AI/AN个人的数据质量.
- 倡导对有关AI/AN种群的流行病学方法进行批判性评估.
主要方法:
- 对AI/AN人群中与孕产妇死亡率相关的病例进行分析.
- 检查与AI/AN社区有关的COVID-19数据.
- 审查流行病学研究中的数据收集,分析和传播实践.
主要成果:
- 殖民实践导致AI/AN健康趋势的数据质量存在重大问题.
- 产妇死亡率和COVID-19数据说明了数据质量差的负面影响.
- 现有的流行病学实践延续了AI/AN健康方面的偏见和不准确性.
结论:
- 流行病学家必须积极挑战隐含的偏见,并质疑既定方法.
- 识别和纠正殖民和种族主义报告实践对于准确的AI/AN健康研究至关重要.
- 包容性,多样性和准确的数据对于理解和改善AI/AN健康结果至关重要.
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