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探索理想黑色素瘤幸存者护理计划背后的动机与多个利益相关者:一个共同创作研究
Nadia Christina Willemina Kamminga1, Marjolein Lugtenberg1,2, Julia Annabel Van den Broek1
1Department of Dermatology, Erasmus MC Cancer institute, University Medical Center Rotterdam, Rotterdam, Netherlands.
JMIR cancer
|January 2, 2025
概括
黑色素瘤患者的生存护理计划 (SCP) 需要个性化. 与患者,医疗保健提供者和IT专家的共同创作揭示了理想SCP功能的各种需求和动机.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 幸存者护理计划 (SCP) 对黑色素瘤幸存者至关重要,但往往不够理想.
- 涉及利益相关者的以用户为中心的设计可以提高SCP的实施和有效性.
研究的目的:
- 确定黑色素瘤幸存者护理计划 (SCP) 的理想功能和特征.
- 探索开发SCP的各种利益相关者的潜在动机.
主要方法:
- 与黑色素瘤患者,医疗保健提供者 (HCP) 和IT专家的共同创作会议.
- 对转录的会议进行主题内容分析,以了解SCP特征选择背后的动机.
主要成果:
- 所有利益相关者包括了所有四个幸存者护理类别的功能.
- 患者优先考虑识别和治疗;医疗保健专家和IT专业人员专注于瘤后续和协调.
- 动机不同:患者引用了个人经验,而医疗保健工作者和IT专家专注于专业知识,可行性和隐私.
结论:
- 由于利益相关者的偏好和动机不同,制定一个广泛的,个性化的SCP至关重要.
- 持续的利益相关者参与和解决可行性/隐私问题对于有效的SCP至关重要.
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