社交媒体招聘作为潜在的脆弱性触发因素:多方利益相关者采访研究
Nina Matthes1, Theresa Willem1,2,3, Alena Buyx1
1Institute of History and Ethics in Medicine, TUM School of Medicine and Health, Technical University of Munich, Ismaningerstr. 22, Munich, 81675, Germany, 49 89 4140 4041.
JMIR human factors
|January 3, 2025
概括
社交媒体招募临床试验可以帮助接触更多的患者,但可能会增加脆弱性. 研究人员必须解决道德问题,并实施战略来保护参与者,特别是那些具有先前存在的脆弱性.
科学领域:
- 临床研究伦理学
- 数字健康数字健康
- 患者招募 患者招募
背景情况:
- 临床研究越来越多地使用社交媒体来招募患者.
- 在社交媒体招聘中对弱势群体的伦理考虑的实证分析是有限的.
研究的目的:
- 探索专家和患者对社交媒体招聘漏洞的看法.
- 调查社交媒体如何减少或放大患者的脆弱性.
主要方法:
- 与社交媒体招聘的多学科专家进行了30次定性访谈.
- 三角化专家见解与6名乙型肝炎患者关于社交媒体使用和诊断的看法.
主要成果:
- 专家认为,社交媒体对于接触弱势群体和保护隐私有好处.
- 确定的风险包括隐私侵犯,算法偏见和数字素养障碍.
- 实际建议包括透明的沟通,解决偏见和隐私教育.
结论:
- 社交媒体招募临床试验对参与者的脆弱性来说,既有机会又有风险.
- 研究人员必须主动设计策略,以减轻已识别的风险和道德挑战.
- 实践建议的实施对于道德和有效的社交媒体招聘至关重要.
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