在共同设计的死胎研究中,丧亲的父母参与:Project Engage的经验
Kirstin Tindal1, Danielle Pollock2, Brad Farrant3
1Centre of Research Excellence in Stillbirth, Mater Research, University of Queensland, Brisbane, Australia; The Ritchie Centre, Hudson Institute of Medical Research, Melbourne, Australia; Department of Obstetrics and Gynaecology, Monash University, Melbourne, Australia.
Women and birth : journal of the Australian College of Midwives
|January 3, 2025
概括
悲伤的父母和研究人员积极共同设计死胎研究资源. 关键的推动因素包括明确的沟通和共同的目标,而障碍则涉及术语和物流,指导未来的最佳实践.
科学领域:
- 围产期健康 围产期健康
- 患者和公众参与研究.
- 定性研究方法 定性研究方法
背景情况:
- 死产研究往往缺乏丧亲父母的投入,他们面临着独特的挑战.
- 项目Engage专注于共同设计资源,以促进丧亲父母参与研究.
- 现有的文献缺乏描述悲伤的父母在共同设计的死胎研究中的经历.
研究的目的:
- 描述和评估丧亲父母作为死胎研究的共同研究员的参与.
- 确定与丧亲父母共同设计死胎研究的障碍和推动因素.
- 为了告知最佳实践,让丧的父母参与未来的研究.
主要方法:
- 描述性和探索性方法被用于记录项目参与过程 (2021-2023).
- 丧亲的父母参与了研究项目的各个方面.
- 代审查和反思被用来进行评估,检查障碍和促进因素.
主要成果:
- 一个共同设计的指南"参与死胎研究:为悲伤的父母提供指南"发表.
- 大多数共同研究人员 (包括五名家长) 感到有价值,结果符合预期.
- 推动因素包括明确的沟通,共同的目标,支持团队和实践研究人员;障碍因素包括术语,物流和治理.
结论:
- 共同设计的经验得到了悲伤的父母和研究人员的积极看法.
- 确定了成功联合设计的关键促进者.
- 概述的过程和建议将指导未来的最佳实践,以帮助丧亲父母参与死胎研究.
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