患者体验,理解和自我管理喘发作:一个定性研究
Ashish Pradhan1, Leah Jayes2, Manpreet Bains3
1Nottingham Asthma Centre, Nottingham Respiratory Research Unit, University of Nottingham, UK.
概括
患有喘发作 (AA) 的患者经历各不相同,影响自我管理. 许多患者对AA缺乏理解,这揭示了喘护理的关键未满足需求,并突出了SABA过度使用等风险.
科学领域:
- 呼吸系统医学 呼吸系统医学
- 患者体验研究 研究研究
背景情况:
- 喘发作 (AA) 是严重的,危及生命的事件,具有显著的发病率,死亡率和医疗保健成本.
- 目前的文献不充分描述患者的经验,影响和对喘发作的理解.
- 了解患者的观点对于制定个性化喘管理和预防策略至关重要.
研究的目的:
- 探索患者的生活经历和对喘发作的理解.
- 研究喘发作对患者生活的影响.
- 检查患者在喘发作期间使用的自我管理策略.
主要方法:
- 一项定性研究采用半结构面试,对英国30名近期 (在4周内) 经历过喘发作的患者进行了半结构面试.
- 数据分析利用框架方法系统地分析患者叙述.
- 这项研究已在clinicaltrials.gov注册 (ID:NCT04410120).
主要成果:
- 患者如何感知和经历喘发作存在显著差异,包括识别前兆症状.
- 患者在袭击期间的自我管理行为各不相同,受先前袭击经历和医疗保健互动的影响.
- 确定的高风险行为包括过度使用短效β-agonist (SABA),低估风险,延迟寻求医疗帮助,以及对AA管理的普遍缺乏理解.
结论:
- 患者的体验和对喘发作的理解有很大的不同.
- 这些变化受到医疗保健因素和攻击特征的影响,塑造了患者的自我管理.
- 这些发现强调了临床护理和围绕喘发作患者教育的重大未满足需求.
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