技术专家/临床用户/患者小组 (TECUPP):将患者和家庭的观点集中在患者报告的措施开发中
Elizabeth Marsolais1, Rebecca Anhang Price2, Carl T Berdahl1,3
1RAND, Santa Monica, CA, USA.
Research involvement and engagement
|January 8, 2025
概括
技术专家/临床用户/患者小组 (TECUPP) 模型有效地将患者和护理人员的经验与医疗保健质量衡量标准的开发相结合. 这种以患者为中心的方法增强了对改善患者结果的理解和测量设计.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
- 质量测量 质量测量
背景情况:
- 患者和护理人员的观点对于医疗保健研究和政策至关重要,但在质量测量开发中通常代表性不足.
- 现有的技术专家小组通常缺乏强大的患者和护理人员纳入.
- 制定以患者为中心的质量指标需要有效的方法来纳入生活经验.
研究的目的:
- 描述一个利益相关者小组模型,即技术专家/临床用户/患者小组 (TECUPP),用于将患者和护理人员的声音整合到患者报告的措施开发中.
- 报告TECUPP模型的设计,应用,好处和挑战,以制定癌症诊断及时性的患者体验措施.
- 为开发以患者为中心的质量措施提供使用TECUPP模型的指导.
主要方法:
- 开发并实施了技术专家/临床用户/患者小组 (TECUPP) 模型,确保患者/护理人员与临床医生和技术专家一起具有重要或平等的代表性.
- 利用TECUPP模型开发基于调查的患者体验指标,专注于癌症诊断的及时性.
- 记录了基于召开TECUPP的经验的关键设计特征,好处,挑战和考虑因素.
主要成果:
- TECUPP模型促进了患者和护理人员的重大贡献,促进了对患者经验的共同理解,并在患者和临床医生之间测量领域.
- 关键的好处包括增强患者/护理人员的参与和改善临床医生对患者观点的理解.
- 确定的挑战包括时间管理和管理项目范围之外的对话.
结论:
- TECUPP模型有效地促进了患者/护理人员和临床医生/测量专家之间的讨论和理解,以开发基于调查的患者报告的测量.
- 成功实施的建议包括招募多样化的参与者,安排频繁的简短会议,确保包容性参与,提供可访问的材料,使用患者故事和采用多种通信模式.
- 该模型通过强有力的结合生活经验,支持开发以患者为中心的质量指标.
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