拉丁裔患者对银病的信仰,态度和经验
Nathaly Gonzalez1, Kamina Wilkerson2, Herbert Castillo Valladares3,4
1Medical College of Wisconsin, School of Medicine, Milwaukee.
JAMA dermatology
|January 8, 2025
概括
患有牛皮的拉丁裔个人面临着获得护理的重大挑战,并经历了生活质量的降低. 这项研究揭示了他们对生物治疗的积极看法和对研究的兴趣,强调了需要量身定制的干预措施.
科学领域:
- 皮肤病学 皮肤病学
- 健康差距 研究 研究 研究 研究
- 质量健康研究 质量健康研究
背景情况:
- 在美国,拉丁裔患者患有不成比例的严重牛皮,获得医疗保健的机会有限,生活质量下降.
- 由于这些差异,了解越来越多的拉丁裔人口中的牛皮体验至关重要.
研究的目的:
- 探索拉丁裔患者对牛皮的看法.
- 调查他们对医疗保健系统,治疗和参与研究的态度和经验.
主要方法:
- 采用深入的,半结构化的访谈进行主题分析的定性研究.
- 在一个城市安全网医院采访了30名中度至重度牛皮的拉丁裔成年人.
- 采访以英语或西班牙语进行,并被反复录制,转录和编码.
主要成果:
- 六个主题出现了:疾病感知,对决策的社会家庭影响,工作影响,访问障碍,治疗接受度和研究兴趣.
- 参与者,主要是说西班牙语的人,对生物药物有积极的看法.
- 注意到人们对参与生物医学研究的兴趣很大.
结论:
- 牛皮严重影响拉丁裔个人,他们积极努力克服健康差异.
- 这一群人对生物疗法持积极看法,对研究表达了兴趣.
- 未来的研究应该专注于教育干预措施,并进一步探索对生物治疗和参与研究的偏好.
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